Joint Action on Rare Cancers
Work Package 6
Quality Evaluation of Clinical Practice Guidelines (CPGs) on rare cancers
Tumours of the endocrine organs
CPGs graded Strong
Dralle, H., Musholt, T.J., Schabram, J. et al. (2013). German Association of Endocrine Surgeons practice guideline for the surgical management of malignant thyroid tumors. Langenbecks Arch Surg (2013) 398:347–375. DOI 10.1007/s00423-013-1057-6. http://www.spcir.com/wp-content/uploads/pdf/formacao/German_Association_of_Endocrine_Surgeons_Practice.pdf
Zerdoud S, Giraudet AL, Leboulleux S, Leenhardt L, Bardet S et al. (2017). Radioactive iodine therapy, molecular imaging and serum biomarkers for differentiated thyroid cancer: 2017 guidelines of the French Societies of Nuclear Medicine, Endocrinology, Pathology, Biology, Endocrine Surgery and Head and Neck Surgery. Ann Endocrinol (Paris) (2017), https://labosud.fr/labosud-ocbiologie/wp-content/uploads/sites/7/2017/05/recos-annales.pdf
Guerrier B, Berthet JP, Cartier C et al. (2012). Recommandation de la Société française d’oto-rhinolaryngologie et de chirurgie de la face et du cou pour la prise en charge ganglionnaire dans les cancers différenciés de souche folliculaire du corps thyroïde chez l’adulte. Update 2017. In Annales Francaises d'Oto-Rhino-Laryngologie et de Pathologie Cervico-Faciale 129(4):250–260 · August 2012. DOI: 10.1016/j.aforl.2012.07.001
Giles RH, Choueiri TK et al. (2017). Recommendations for the Management of Rare Kidney Cancers. Eur Urol. 2017 Dec;72(6):974-983. doi: 10.1016/j.eururo.2017.06.040. https://www.sciencedirect.com/science/article/abs/pii/S0302283817305420
Lenders, J. W. M., et al. (2014). "Pheochromocytoma and Paraganglioma: An Endocrine Society Clinical Practice Guideline." The Journal of Clinical Endocrinology & Metabolism 99(6): 1915-1942. https://academic.oup.com/jcem/article/99/6/1915/2537399
Elisei, R., Alevizaki, M., Conte-Devolx, B., Frank-Raue, K., Leite, V., & Williams, G. R. (2013). 2012 European thyroid association guidelines for genetic testing and its clinical consequences in medullary thyroid cancer. European thyroid journal, 1(4), 216–231. doi:10.1159/000346174. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3821492/pdf/etj-0001-0216.pdf
Pacini, F., et al. (2012).Thyroid cancer: ESMO Clinical Practice Guidelines for diagnosis, treatment and follow-up. Annals of Oncology 23(suppl_7): vii110-vii119. https://www.esmo.org/Guidelines/Endocrine-and-Neuroendocrine-Cancers/Thyroid-cancer
Haugen, BR., Alexander, EK., Bible, KC. et al. (2016). Management Guidelines for Adult Patients with Thyroid Nodules and Differentiated Thyroid Cancer: The American Thyroid Association Guidelines Task Force on Thyroid Nodules and Differentiated Thyroid Cancer. Thyroid, 26(1), 1-133.
https://doi.org/10.1089/thy.2015.0020. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4739132/pdf/thy.2015.0020.pdf
Thakker, R. V., et al. (2012). "Clinical Practice Guidelines for Multiple Endocrine Neoplasia Type 1 (MEN1)." The Journal of Clinical Endocrinology & Metabolism 97(9): 2990-3011. https://academic.oup.com/jcem/article-pdf/97/9/2990/20288445/jcem2990.pdf
Perros P, Colley S, Boelaert K et al. (2014). British Thyroid Association Guidelines for the Management of Thyroid Cancer; Clinical Endocrinology (2014), 81 (Suppl. 1), 1–122; https://onlinelibrary.wiley.com/doi/pdf/10.1111/cen.12515
LCA Head and Neck/Thyroid Cancer Clinical Guidelines. Published by London Cancer Alliance;
http://www.londoncanceralliance.nhs.uk/media/75780/LCA_Head_Neck_Guidelines2014_Final.pdf
Gaujoux, S., & Mihai, R. (2017). European Society of Endocrine Surgeons (ESES) and European Network for the Study of Adrenal Tumours (ENSAT) recommendations for the surgical management of adrenocortical carcinoma. The British journal of surgery, 104 4, 358-376 . http://www.ensat.org/resources/Pictures/Gaujoux_et_al-2017-British_Journal_of_Surgery.pdf
Caron P, Courdon F et al. (2017). Cancer de la thyroïde (Thyroid cancer). Version 3 - 2017 (Référentiel régional/ Oncomip).
http://www.oncomip.org/fr/dldoc/?t=recommandations&f=doc1&d=93&h=008fc18c39cec06fcf11007194cffef5
Mitchell AL , Gandhi A , Scott-Coombes D , Perros P (2016). Management of thyroid cancer: United Kingdom National Multidisciplinary Guidelines. The Journal of Laryngology & Otology (2016), 130 (Suppl. S2), S150–S160; doi:10.1017/S0022215116000578. http://europepmc.org/backend/ptpmcrender.fcgi?accid=PMC4873931&blobtype=pdf
Locati LD, Durante C, Furlani L et al. (2017). Linee guida Tumori della tiroide (Thyroid tumor guidelines).
http://www.aiom.it/C_Common/Download.asp?file=/$Site$/files/doc /LG/2017_LGAIOM_Tiroide.pdf
Schrier J et al. (2015). Thyroid cancer; Nation-wide guideline, Version: 2.0. The Dutch Society for Neuro-Oncology
CPGs graded Moderate
M. Dietlein , W. Eschner et al. (1016). DGN-Handlungsempfehlung (S1-Leitlinie): Radio iodtherapie beim differenzierten Schilddrüsenkarzinom Verfahrensanweisung – Version 4 (Procedure guidelines for radioiodine therapy of differentiated thyroid cancer Version4). 10/2015 – AWMF-Registernummer: 031-002;
Wörmann B, Aebi S, Balic Met al. Leitlinien: Mammakarzinom des Mannes (Male breast carcinoma Guidelines).
Trigo, J. M., Capdevila, J., Grande, E., Grau, J., Lianes, P (2014). Thyroid cancer: SEOM clinical .Clin Transl Oncol (2014) 16:1035–1042. DOI 10.1007/s12094-014-1224-4.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4239803/pdf/12094_2014_Article_1224.pdf
Leenhardt L, et al. (2013) European Thyroid Association guidelines for cervical ultrasound scan and ultrasound-guided techniques in the postoperative management of patients with thyroid cancer. Eur Thyroid J 2013;2:147–159; DOI: 10.1159/000354537. https://www.karger.com/Article/Pdf/354537
Baudin et al. (2014). Thésaurus (Recommandations) - 2014 - rédigé sous l’égide du Réseau COMETE - Cancers de la surrénale -Programme Cancers Rares INCa.
Pacini F et al. (2016). Recommendations for post‑surgical thyroid ablation in differentiated thyroid cancer: a 2015 position statement of the Italian Society of Endocrinology. J Endocrinol Invest (2016) 39:341–347; DOI 10.1007/s40618-015-0375-7.
https://link.springer.com/content/pdf/10.1007%2Fs40618-015-0375-7.pdf
Rigaud J, Avancès C et al. (2013). contribution to the French National Cancer Institute's reference frame: Adrenal malignant tumors Prog Urol. 2013 Nov;23 Suppl 2: S167-174. doi: 10.1016/S1166-7087(13)70054-X.
https://www.sciencedirect.com/science/article/pii/S116670871370054X?via%3Dihub
Baudin et al. Phéochromocytomes/paragangliomes de la surrénale. Thésaurus (Recommandations) - 2014 - rédigé sous l’égide du Réseau COMETE - Cancers de la surrénale - Programme Cancers Rares INCa;
Russ, G., et al. (2017). European Thyroid Association Guidelines for Ultrasound Malignancy Risk Stratification of Thyroid Nodules in Adults: The EU-TIRADS. Eur Thyroid J 2017;6:225–237. DOI: 10.1159/000478927; https://www.karger.com/Article/Pdf/478927
Berruti, A., et al. (2012). Adrenal cancer: ESMO Clinical Practice Guidelines for diagnosis, treatment and follow-up. Annals of Oncology 23(suppl_7): vii131-vii138. https://academic.oup.com/annonc/article/23/suppl_7/vii131/144393
INCA /HAS: ALD 30 – Tumeur maligne, affection maligne du tissu Lymphatique ou hématopoïétique (Cancer de la thyroïde); 2010-2013; https://www.has-sante.fr/portail/upload/docs/application/pdf/2010-07/ald_30_gm_cancer__thyroide_web.pdf
Work Package 6
