EU Joint Action on Rare Cancers (JARC)
The framework for EU stakeholders and policy makers to work together, set the agenda at national level and help provide diagnostics, healthcare and support to all our citizens who suffer from rare cancer.
The Joint Action on Rare Cancers is a multistakeholders collaboration between 18 Member States and European Commission.
Joint Action on Rare Cancers
Improving epidemiological surveillance of rare in the EU
Identifying standards of care for all falilies of rare cancers to ensure sharing of best practices and equality of care for rare cancers accross Europe, particulary through clinical networking
Improving the implementation at local level and within ERNs of clinical practice guidelines on rare cancers
Promoting integration of translational research innovations into rare cancer care
Improving education on rare cancers for medical and non medical experts to ameliorate management of rare cancers and to improve rare cancer patients empowerment in the EU
Identifying core strategies to incorporate in national cancer plans and rare disease plans to address the specific needs of rare cancers accross EU