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Objectives

Work Package 6

  • Mapping available clinical practice guidelines at the European level on all families of rare cancers and identify gaps

  • Providing quality evaluation of existing clinical practice guidelines for rare cancer subtypes

  • Identifying open issues about implementation of clinical practice guidelines at the local level

  • working out solutions on how to incorporate clinical practice guidelines within ERNs

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WP6: Description of work

  • Task 6.1 Available clinical practice guidelines at the European level on all families of rare cancers

  • Task 6.2 Quality evaluation of existing clinical practice guidelines for rare cancer subtypes

  • Task 6.3 Open issues about implementation of clinical practice guidelines at the local level, with special regard to their relation with local reimbursement mechanisms and to study innovative models to provide value-based rare cancer care

  • Task 6.4 Solutions on how to incorporate clinical practice guidelines within ERNs.

  1. Head and neck cancers (cancers of nasal cavity and sinuses, nasopharynx, hypopharynx, larynx, salivery grands, oropharynx, oral cavity and lip, eye, middle ear)

  2. Thoracic rare cancers (tumours of trachea, thymus, malignant mesothelioma)

  3. Male genital and urogenital rare cancers (tumours of testis, penis, renal pelvis, ureter, urethra and extragonodal germ cell tumours)

  4. Female genital rare cancers (tumours of vulva and vagina, non epithlial tumours of ovary, trophoblastic tumours of the placenta)

  5. Neuroendocrine tumours

  6. Tumours of he endocrine organs (cancers of thyroid, parathyroid, adrenal cortex, pituitary gland)

  7. Central Nervous System tumours (Glial tumours, medulloblastoma, malignant meningioma)

  8. Sarcomas (soft tissue sarcomas, bone sarcomas, gastrointestinal stromal tumours)

  9. Digestive rare cancers (Tumours of small intestine, anal canal, gallbladder and extrahepatic biliary duct)

  10. Rare skin cancers and non-cutaneous melanoma (melanoma of mucosae and of the uvea, adnexal skin carcinomas, Kaposi sarcoma)

  11. Haematological rare malignancies (acute myeloid leukemia, myeloproliferative neoplasms, myelodisplastic and myeloproliferative neoplasms, histiocytic and dendritic cell neoplasms)

  12. Pediatric cancers (all)

Families of rare cancers

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EURACAN is the ERN (European Reference Networks) for adult rare solid cancers.

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More than 300 rare cancers have been identified. 

ERN/EURACAN covers all rare adult solid tumour cancers, grouping them into 10 domains corresponding to the RARECARE classification and ICD10. 

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EURACAN is a patient-centered multi-domain ERN that gathers the largest network of active EU centres involved in the management of patients with adult rare solid cancer: the network distinguishes rare cancers into 10 domains corresponding to the 10th revision of the International Statistical Classification of Diseases and Related Health Problems (ICD10)RARECARE and RARECAreNet projects.

 

 

The EURACAN domains gather groups of rare tumours defined by common histologic features, while the subdomains are based on specific histological classifications and organ of origin categorized under the parent domain. 

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AREAS OF EXPERTISE

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  • G1: Sarcoma of the soft tissue, bone and viscerae (Sarcoma)

  • G2: Rare neoplasm of the female genital organs and placentas (Rare GYN)

  • G3: Rare neoplasm of the male genital organs, and of the urinary tract (Rare GU)

  • G4: Neuroendocrine tumours (NET)

  • G5: Rare neoplasm if the digestive tract (Rare GI)

  • G6: Rare neoplasm of endocrine organs (Endocrine)

  • G7: Rare neoplasm of the head and neck: Salivary gland tumours, nasopharyngeal cancer, nasal and sinonasal cancers, middle ear (Rare H&N)

  • G8: Rare neoplasm of the thorax: Thymoma, mediastinum and pleura (Rare Thoracic)

  • G9: Rare neoplasm of the skin and eye melanoma (Rare Skin/Eye melanoma)

  • G10: Rare neoplasm of the brain, spinal cords (Rare Brain)

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Work Package 6

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