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Joint Action on Rare Cancers
Work Package 6
Quality Evaluation of Clinical Practice Guidelines (CPGs) on rare cancers
Topic: Neuroendocrine tumours
CPGs graded Strong
Garcia-Carbonero, R., JImenez-Fonseca, P., Teulé, A. et al. (2014). SEOM clinical guidelines for the diagnosis and treatment of gastroenteropancreatic neuroendocrine neoplasms (GEP-NENs). DOI: 10.1007/s12094-014-1214-6 (Clin Transl Oncol (2014) 16:1025–1034). https://link.springer.com/content/pdf/10.1007%2Fs12094-014-1214-6.pdf
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Aegerter P, Baujat B, Bensadoun RJ et al. (2017). Recommandation pour la Pratique Clinique : G3 - Tumeurs malignes primitives des voies aérodigestives supérieures en excluant le carcinome épidermoïde de type « commun». https://www.orlfrance.org/wp-content/uploads/2017/06/Refcor_VADS.pdf
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Ramage JK, Ahmed A, Ardill J, et al. (2012). Guidelines for the management of gastroenteropancreatic neuroendocrine (including carcinoid) tumours (NETs). https://gut.bmj.com/content/gutjnl/61/1/6.full.pdf
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Matysiak-Budnik T, Fabiani B, Hennequin C et al. (2018). Gastrointestinal lymphomas: French Intergroup clinical practice recommendations for diagnosis, treatment and follow-up. https://www.snfge.org/sites/default/files/SNFGE/TNCD/tncd_chap-10-lymphomes-gastrointestinaux_2017-12-21.pdf
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CPGs graded Moderate
Locher C, Batumona B, Afchain P, Carrère N A. et al. (2014). Small bowel adenocarcinoma: French Intergroup Clinical Practice Guidelines for diagnosis, treatments and follow-up. https://www.snfge.org/sites/default/files/SNFGE/TNCD/tncd_chap-13-adenocarcinome-intestin-grele_2017-09-15.pdf
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Goichot B, Deblock M, Fein F et al. (2018). Tumeurs neuroendocrines du pancréas. http://oncologik.fr/referentiels/interregion/tumeurs-neuroendocrines-du-pancreas
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Cadiot G, Baudin E, Couvelard A, Dromain C, Lepage C, LombardBohas et al. (2017). «Tumeurs neuro-endocrines». Thésaurus National de Cancérologie Digestive, 03-2016.
https://www.snfge.org/sites/default/files/SNFGE/TNCD/tncd_tne_version_finale_2016.pdf
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Arpin D, Gérinière L, Lombard-Bohas C on behalf of the editing committee of Auvergne Rhône-Alpes Guidelines in Thoracic Oncology. [Guidelines on Chest Neuroendocrine Tumors: 2019 Update]. ARISTOT; 2019 [French]. ISBN 978-2-490858-09-5. Available from http://espacecancer.sante-ra.fr/Pages/referentiels.aspx and from www.lecancer.fr; http://referentiels-aristot.com/wp-content/uploads/5_TNE_2019_VDEF.pdf
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Canlorbe G, Bendifallah S. (2015). Rare benign breast tumors including Abrikossoff tumor (granular cell tumor), erosive adenomatosis of the nipple, cytosteatonecrosis, fibromatosis (desmoid tumor), galactocele, hamartoma, hemangioma, lipoma, juvenile papillomatosis, pseudoangiomatous hyperplasia, and syringomatous adenoma: guidelines for clinical practice. J Gynecol Obstet Biol Reprod (Paris). 2015 Dec;44(10):1030-48. doi: 10.1016/j.jgyn.2015.09.034. Epub 2015 Oct 31.
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Knigge U, Öberg K et al. (2012). Neuroendocrine gastro-entero-pancreatic tumors: ESMO Clinical Practice Guidelines for diagnosis, treatment and follow-up. Annals of oncology, 23 Suppl 7, vii124-30. doi:10.1093/annonc/mds295; https://academic.oup.com/annonc/article-pdf/23/suppl_7/vii124/6680258/mds295.pdf
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Öberg, K., et al. (2012). "Neuroendocrine bronchial and thymic tumors: ESMO Clinical Practice Guidelines for diagnosis, treatment and follow-up." Annals of Oncology 23(suppl_7): vii120-vii123. https://academic.oup.com/annonc/article-pdf/23/suppl_7/vii120/6678716/mds267.pdf
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Bozkurt MF, Virgolini I, Balogova S, et al (2017) Guideline for PET/CT imaging of neuroendocrine neoplasms with 68Ga- DOTA-conjugated somatostatin receptor targeting peptides and 18F-DOPA. Eur J Nucl Med Mol Imaging 44:1588–601. http://dskfnm.org/Doks/Guidelines/201701_EANM_NEN_GL_NationalReview.pdf
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Caplin, M. E., et al. (2015). "Pulmonary neuroendocrine (carcinoid) tumors: European Neuroendocrine Tumor Society expert consensus and recommendations for best practice for typical and atypical pulmonary carcinoids." Annals of Oncology 26(8): 1604-1620. https://academic.oup.com/annonc/article/26/8/1604/247409
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Work Package 6
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