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Topic: Male genital and urogenital rare 
CPGs graded Strong
H. Van Poppel, N. A. Watkin, S. Osanto, L. Moonen, A. Horwich, V. Kataja, on behalf of the ESMO Guidelines Working Group, Penile cancer: ESMO Clinical Practice Guidelines for diagnosis, treatment and follow-up, Annals of Oncology, Volume 24, Issue suppl_6, October 2013, Pages vi115–vi124, https://doi.org/10.1093/annonc/mdt286
Hakenberg, O. W., Compérat, E. M., Minhas, S. et al. (2014). EAU guidelines on penile cancer: 2014 update (2018). Eur Urol. 2015 Jan;67(1):142-50. doi: 10.1016/j.eururo.2014.10.017.https://uroweb.org/wp-content/uploads/EAU-Guidelines-Penile-Cancer-2018.pdf  
Oldenburg, J., et al. (2013). "Testicular seminoma and non-seminoma: ESMO Clinical Practice Guidelines for diagnosis, treatment and follow-up†." Annals of Oncology 24(suppl_6): vi125-vi132.https://academic.oup.com/annonc/article-pdf/24/suppl_6/vi125/6676323/mdt304.pdf
CPGs graded Moderate
Gakis, G., et al. (2017). EAU Guidelines on Primary Urethral Carcinoma; Update 2018 (European Association of Urology). 
https://uroweb.org/wp-content/uploads/EAU-Primary-Urethral-Carcinoma-Guidelines-2018V2.pdf
Rouprêt M, Babjuk M, Compérat E, Zigeuner R, Sylvester RJ, Burger M, et al. (2018). European association of urology guidelines on upper urinary tract urothelial carcinoma: 2017 update. Eur Urol. 2018; 73: 111-22. doi: 10.1016/j.eururo.2017.07.036. https://uroweb.org/wp-content/uploads/Roupr%C3%AAt-M-et-al.-Eur-Urol-2018-731111.-European-Association-of-Urology-Guidelines-on-Upper-Urinary-Tract-Urothelial-Carcinoma-2017-Update.pdf
Lorch A, Albers P, Cathomas R et al. (2016). Keimzelltumoren des Mannes (ICD-10 C62). DGHO (Deutsche Gesellschaft für Hämatologie und Medizinische Onkologie) und den Empfehlungen der AWMF. 
https://www.onkopedia.com/de/onkopedia/guidelines/keimzelltumoren-des-mannes/@@view/pdf/index.pdf
Albers, P., Albrecht, W., Algaba, F., Bokemeyer, C., Cohn-Cedermark, G., Oldenburg, J. (2015). Guidelines on Testicular Cancer: 2015 Update. European Urology. https://doi.org/10.1016/j.eururo.2015.07.044. https://uroweb.org/wp-content/uploads/Albers-P-et-al.-Eur-Urol-2015-6861054.-Guidelines-on-Testicular-Cancer-2015-update..pdf
Durand X, Fléchon A, Murez T et al. (2016). Recommandations en onco-urologie 2016-2018 du CCAFU : Tumeurs germinales testiculaires (CCAFU french national guidelines 2016-2018 on testicular germ cell tumors). http://www.oncopaca.org/sites/default/files/reco_onco_urologie_tumeurs_testiculaires_ccafu_2016-2018.pdf
Rouprêt M, Colin P, et al. (2016). Recommandations en onco-urologie 2016-2018 du CCAFU : Tumeurs de la voie excrétrice supérieure (CCAFU french national guidelines 2016-2018 on upper tract tumors). 
http://www.oncopaca.org/sites/default/files/reco_onco_uro_cancer_tumeurs_voie_excretrice_superieure_ccafu_nov2016.pdf
Calaminus G, Schönberger S, Schneider DT et al. (2012). S1- Extrakranielle Keimzelltumoren . AWMF-Register Nr. 025/010. https://www.awmf.org/uploads/tx_szleitlinien/025-010l_S1_Extrakranielle_Keimzelltumoren_2012-01-abgelaufen.pdf
Sèbe P, Ferretti L, Savoie PH et al. (2016). Recommandations en onco-urologie 2016-2018 du CCAFU : Tumeurs malignes du pénis (CCAFU french national guidelines 2016-2018 on penile cancer). http://www.oncopaca.org/sites/default/files/reco_onco_urologie_tumeurs_malignes_penis_ccafu_2016-2018.pdf
Parr N, Sangar V, Elliott T, Kirkbride P et al. (2017). Diagnosis, Assessment and MDT Discussion. North West & North Wales Cancer Networks’ Clinical and Referral Guidelines for Penile Cancer; Reviewed 2017. 
https://www.nwcscnsenate.nhs.uk/files/4814/3290/5206/Penile_Cancer_Guidelines_2015_docx.pdf
Rouprêt M, Neuzillet Y et al. (2016).Recommandations en onco-urologie 2016-2018 du CCAFU : Tumeurs de la vessie. 
CCAFU french national guidelines 2016-2018 on bladder cancer. Prog Urol. 2016 Nov;27 Suppl 1:S67-S91. doi: 10.1016/S1166-7087(16)30704-7. http://www.proinfoscancer.org/sites/default/files/reco_onco_urologie_tumeurs_vessie_ccafu_nov2016.pdf 
Kumar V, Sethia K, Figus A, Levell N et al. (2012). Guidelines for the Management of Penile Cancer (AngCN CCG-U1). Anglia Cancer Network. https://www.canceralliance.co.uk/download/cb6ba817-e5c1-4856-aa49-b5830613374e 
Hutton P, Porfiri E, Stevenson R, Patel P et al.(2016). Guidelines for the Management of Testicular Cancer. West Midlands Clinical Network
and Clinical Senate. National Health Service (NHS). https://www.england.nhs.uk/mids-east/wp-content/uploads/sites/7/2018/05/guidelines-for-the-management-of-testicular-cancer.pdf 
Aparicio, J et al. “SEOM clinical guidelines for the management of germ cell testicular cancer (2016).” Clinical & translational oncology : official publication of the Federation of Spanish Oncology Societies and of the National Cancer Institute of Mexico vol. 18,12 (2016): 1187-1196. doi:10.1007/s12094-016-1566-1. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5138244/pdf/12094_2016_Article_1566.pdf
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Work Package 6

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Tasks of work package 6

  • Map available clinical practice guidelines (CPGs) at the European level on all families of rare cancers and identify gaps

  • Quality evaluation of existing guidelines for rare cancer subtypes  

The JARC Work Package 6 maintains this website to share the results of quality evaluation of existing CPGs at European local and national level on rare cancers with partners involved in the EU JARC Project. However, the JARC Work Package 6 does not accept any responsibility or obligation of any kind whatsoever with regard to the information contained on this site.

The  JARC WP 6 Website contains links to other websites.

Not having control over the content of these third-party websites, no responsibility is assumed for their policies or practices.

Therefore, please review the privacy policies of these third-party websites.

Tasks of work package 6

  • Open issues about implementation of CPGs at the local level and their interface with reimbursement systems

  • Work out solutions on how to assess the implementation of CPGs in the context of ERNs and national clinical collaborative networks

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