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Paediatric cancers (all)
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For more Information

The European Society for Paediatric Oncology (SIOP) statement:

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"90% of newly diagnosed paediatric cancer patients are treated within EU prospective clinical trials or according to European recommendations established through clinical research. Phase 3 protocols are used for the majority of the paediatric cancer population. The paediatric cancer community is well informed of the ongoing trials and guidelines through the respective European Clinical Trial Groups and SIOP Europe".

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Relevant documents include:

 

The European Standards of Care for Children with Cancer (SIOP Europe, 2009): https://www.siope.eu/wp-content/uploads/2013/09/European_Standards_final_2011.pdf 

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Recommendations for the Organisation of Care in Paediatric Radiation Oncology across Europe (Janssens GO, 2019): 

https://www.ejcancer.com/article/S0959-8049(19)30182-0/fulltext

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ESMO guidelines incl. Bone sarcomas: ESMO–PaedCan–EURACAN Clinical Practice Guidelines for diagnosis, treatment and follow-up (Casali et al., 2018): https://www.esmo.org/Guidelines/Sarcoma-and-GIST/Bone-Sarcomas

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PanCare Guidelines on Survivorship (PanCare/IGHG): https://www.pancare.eu/en/guidelines

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The work on very rare tumour guidelines in the European Cooperative Study Group for Pediatric Rare Tumors: https://www.raretumors-children.eu

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 ESGO – SIOP Europe Guideline on Non-Epithelial Ovarian Cancers in Adolescents and Young Adults (under development)

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Work Package 6

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Tasks of work package 6

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  • Map available clinical practice guidelines (CPGs) at the European level on all families of rare cancers and identify gaps

  • Quality evaluation of existing guidelines for rare cancer subtypes  

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The JARC Work Package 6 maintains this website to share the results of quality evaluation of existing CPGs at European local and national level on rare cancers with partners involved in the EU JARC Project. However, the JARC Work Package 6 does not accept any responsibility or obligation of any kind whatsoever with regard to the information contained on this site.

The  JARC WP 6 Website contains links to other websites.

Not having control over the content of these third-party websites, no responsibility is assumed for their policies or practices.

Therefore, please review the privacy policies of these third-party websites.

Tasks of work package 6

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  • Open issues about implementation of CPGs at the local level and their interface with reimbursement systems

  • Work out solutions on how to assess the implementation of CPGs in the context of ERNs and national clinical collaborative networks

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