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Evaluation of existing CPGs for rare cancer subtypes

Appraisal Tool

  • Assess the accessibility of existing CPGs (online and printed versions) and the degree of updating of CPGs

  • Assess the validation process of guidelines and the contribution of partners

  • Score the CPGs according to available quality criteria

Appraisal Tool: Mix Methods

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  • Using of Cluzeau instrument with 19 sample questions (Evaluation Criteria)

  • Using of the international Centre for Allied Health Evidence (iCAHE) instrument for scoring (binary scored instrument) => appraisal score calculation

  • Multiple choice answer, mostly the “yes/no” score

  • =>Yes=1; No=0

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537 guidelines produced by different medical databases and European cancer societies were identified and collected. Documents that did not contain recommendations and/or evidence based clinical practice were exclude, so 257 guidelines fulfilled the inclusion criteria. After the screening process 48% of the collected guidelines were included in the quality evaluation.

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Guidelines collected

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Work Package 6

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Tasks of work package 6

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  • Map available clinical practice guidelines (CPGs) at the European level on all families of rare cancers and identify gaps

  • Quality evaluation of existing guidelines for rare cancer subtypes  

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The JARC Work Package 6 maintains this website to share the results of quality evaluation of existing CPGs at European local and national level on rare cancers with partners involved in the EU JARC Project. However, the JARC Work Package 6 does not accept any responsibility or obligation of any kind whatsoever with regard to the information contained on this site.

The  JARC WP 6 Website contains links to other websites.

Not having control over the content of these third-party websites, no responsibility is assumed for their policies or practices.

Therefore, please review the privacy policies of these third-party websites.

Tasks of work package 6

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  • Open issues about implementation of CPGs at the local level and their interface with reimbursement systems

  • Work out solutions on how to assess the implementation of CPGs in the context of ERNs and national clinical collaborative networks

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