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Topic: Sarcoma
CPGs graded Strong
Casali PG, Abecassis N et al. (2018). Gastrointestinal stromal tumours: ESMO–EURACAN Clinical Practice Guidelines for diagnosis, treatment and follow-up; Annals of Oncology, Volume 29, Issue Supplement_4, October 2018, Pages iv68–iv78. 
https://academic.oup.com/annonc/article-pdf/29/Supplement_4/iv68/27689698/mdy095.pdf
Casali PG, Abecassis N et al. (2018). Soft tissue and visceral sarcomas: ESMO–EURACAN Clinical Practice Guidelines for diagnosis, treatment and follow-up. Annals of Oncology, Volume 29, Issue Supplement_4, October 2018, Pages iv51–iv67; https://doi.org/10.1093/annonc/mdy096. 
https://academic.oup.com/annonc/article-pdf/29/Supplement_4/iv268/25899735/mdy321.pdf
Casali PG, Bielack S et al. (2018). Bone sarcomas: ESMO–PaedCan–EURACAN Clinical Practice Guidelines for diagnosis, treatment and follow-up. Annals of Oncology, Volume 29, Issue Supplement_4, October 2018, Pages iv79–iv95; 
https://academic.oup.com/annonc/article-pdf/29/Supplement_4/iv79/25899745/mdy310.pdf
Dirksen U, Jürgens H et al. (2014). Leitlinie: Ewing-Sarkome des Kindes- und Jugendalters (German); 025-006 – S1
https://www.awmf.org/uploads/tx_szleitlinien/025-006l_S1_Ewing_Sarkome_Kinder_Jugendliche_2014-06-abgelaufen.pdf
Redondo A, Bagué S et al. (2017). Malignant bone tumors (other than Ewing's): clinical practice guidelines for diagnosis, treatment and follow-up by Spanish Group for Research on Sarcomas (GEIS). DOI 10.1007/s00280-017-3436-0; Cancer Chemother Pharmacol (2017) 80:1113–1131. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5686259/pdf/280_2017_Article_3436.pdf
Blay JY, Landi B, Bonvalot S et al. (2016). Tumeurs stromales gastro-instestinales/ Gastrointestinal stromal tumours (GIST). Thésaurus National de Cancérologie Digestive, Décembre 2018. 
https://www.snfge.org/sites/default/files/SNFGE/TNCD/tncd_chap-12-gist_10-12-2018-vf.pdf
Comandone A et al. (2017). Guida Sarcomi dei tessuti molli e GIST (Italian)/ Guidelines on soft tissue sarcoma and GIST. https://www.aiom.it/wp-content/uploads/2018/11/2018_LG_AIOM_Sarcomi.pdf
Dangoor A, Seddon B et al. (2016). UK guidelines for the management of soft tissue sarcomas; DOI 10.1186/s13569-016-0060-4; Dangoor et al. Clin Sarcoma Res (2016) 6:20.
https://sarcoma.org.uk/sites/default/files/uk_guidelines_for_the_management_0.pdf
Guldvog B et al. (2018). National guidelines for diagnostic, treatment and follow-up care of sarcoma, Norwegian Directorate of Health)/Nasjonalt handlingsprogram med retningslinjer for diagnostikk, behandling og oppfølging av sarkom. 
https://www.helsedirektoratet.no/retningslinjer/sarkomer-handlingsprogram#!
CPGs graded Moderate
Schütte J, Bauer S, Brodowicz T et al. (2017). Leitlinien - ICD-10 C48,ICD-10 C49 : Weichgewebssarkome des Erwachsenen (Soft Tissue Sarcomas In Adults ).
Koscielniak E, Klingebiel T  (2017). S1-Leitlinie 025/007: Weichteilsarkome (Soft tissue sarcoma). 
https://www.awmf.org/uploads/tx_szleitlinien/025-007l_S1_Weichteilsarkome_2017-03.pdf
Mosthaf FA, Esser S (2017). Leitlinien-ICD-10 C46.1:  Kaposi-Sarkom. https://www.onkopedia.com/de/onkopedia/guidelines/kaposi-sarkom/@@view/pdf/20180918-051944.pdf
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Dirksen U, Brodowicz T, Hummel Y et al. (2012). Leitlinie: Ewing Sarkom. DGHO Deutsche Gesellschaft für Hämatologie und Medizinische Onkologie e.V.; https://www.onkopedia.com/de/onkopedia/guidelines/ewing-sarkom/@@view/pdf/20180918-051944.pdf
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García del Muro Solans, X., Martín Broto P. et al. Clin Transl Oncol (2012) 14: 541. SEOM clinical guidelines for the management of adult soft tissue sarcomas; Clin Transl Oncol (2012) 14:541-544 DOI 10.1007/s12094-012-0838-7
https://doi.org/10.1007/s12094-012-0838-7
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Redondo, A., Cruz, J., Lopez-Pousa, A. et al (2013). SEOM clinical guidelines for the treatment of osteosarcoma in adults; â€‹
DOI: https://doi.org/10.1007/s12094-013-1087-0
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Poveda A, martinez V et al. (2016).SEOM Clinical Guideline for gastrointestinal sarcomas (GIST) (2016); Clin Transl Oncol (2016) 18:1221–1228. DOI 10.1007/s12094-016-1579-9
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5138245/pdf/12094_2016_Article_1579.pdf
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The ESMO/European Sarcoma Network Working Group: Gastrointestinal stromal tumours: ESMO Clinical Practice Guidelines for diagnosis, treatment and follow-up; Annals of Oncology, Volume 26, Issue suppl_5, September 2015, Pages v174–v177.
https://academic.oup.com/annonc/article-pdf/25/suppl_3/iii21/6678251/mdu255.pdf
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The ESMO/European Sarcoma Network Working Group: Soft tissue and visceral sarcomas: ESMO Clinical Practice Guidelines for diagnosis, treatment and follow-up, Annals of Oncology, Volume 25, Issue suppl_3, September 2014, Pages iii102–iii112. 
https://academic.oup.com/annonc/article-pdf/25/suppl_3/iii102/6677809/mdu254.pdf
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The ESMO/European Sarcoma Network Working Group, Bone sarcomas: ESMO Clinical Practice Guidelines for diagnosis, treatment and follow-up, Annals of Oncology, Volume 25, Issue suppl_3, September 2014, Pages iii113–iii123. 
https://academic.oup.com/annonc/article-pdf/25/suppl_3/iii113/6678512/mdu256.pdf
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Judson I, Bulusu R et al. (2017). UK clinical practice guidelines for the management of gastrointestinal stromal tumours (GIST). DOI 10.1186/s13569-017-0072-8; https://clinicalsarcomaresearch.biomedcentral.com/track/pdf/10.1186/s13569-017-0072-8?site=clinicalsarcomaresearch.biomedcentral.com
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Gerrand C, Athanasou N et al. (2016). UK guidelines for the management of bone sarcomas; DOI 10.1186/s13569-016-0047-1.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4855334/pdf/13569_2016_Article_47.pdf
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Jebsen N, Engellau J et al. (2015). Scandinavian Sarcoma Group SSG XXIV Recommendations for Radiotherapy in Bone- and Soft Tissue Sarcoma; http://www.ssg-org.net/wp-content/uploads/2011/05/SSG-RT-Guidelines-December-2015.pdf
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Durand X, Murez T, Fléchon A et al. (2016). Recommandations en onco-urologie 2016-2018 du CCAFU : Sarcomes rétropéritonéaux (CCAFU french national guidelines 2016-2018 on retroperitoneal sarcoma). 
https://onconormandie.fr/wp-content/uploads/2017/10/Recommandats-en-onco-urologie-sarcomes-retroperitoneaux.pdf
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Tumeurs stromales gastro-intestinales (GIST)/French national guidelines : réseaux régionaux de cancérologie , 2018. 
http://www.reseau-carol.fr/images/mediatech/GIST_OncoLogik.pdf
Rios M, Leroux A et al. (2019). Tumeurs desmoïdes; http://oncologik.fr/referentiels/interregion/tumeurs-desmoides
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Avancès C, Rigaud J et al. (2013). CCAFU’s contribution to the French National Cancer Institute’s reference frame: Retroperitoneal sarcomas; Progrès en Urologie (2013), Suppl. 2 S161-S166 (French national guidelines). 
https://www.urofrance.org/sites/default/files/elsevier/documents/data/PU/2018/3247/63648//FR/868227/main.pdf
Etienne-Mastroïanni B, Swalduz A, Chalabreysse L on behalf of the editing committee of Auvergne Rhône-Alpes Guidelines in Thoracic Oncology. [Guidelines on Sarcomatoid Carcinoma of the lung: 2019 Update]. ARISTOT; 2019 [French]. ISBN 978-2-490858-03-3. Available from http://espacecancer.sante-ra.fr/Pages/referentiels.aspx and from www.lecancer.fr; http://referentiels-aristot.com/wp-content/uploads/4_CPS_2019_VDEF.pdf
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López-Pousa et al. (2016). SEOM Clinical Guideline of management of softtissue sarcoma; DOI 10.1007/s12094-016-1574-1. Clin Transl Oncol (2016) 18:1213–1220; https://link.springer.com/content/pdf/10.1007%2Fs12094-016-1574-1.pdf
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Poveda, Andrés et al. (2016). GEIS guidelines for gastrointestinal sarcomas (GIST). DOI: https://doi.org/10.1016/j.ctrv.2016.11.011; 
https://www.cancertreatmentreviews.com/article/S0305-7372(16)30136-0/pdf
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Work Package 6

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Tasks of work package 6

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  • Map available clinical practice guidelines (CPGs) at the European level on all families of rare cancers and identify gaps

  • Quality evaluation of existing guidelines for rare cancer subtypes  

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The JARC Work Package 6 maintains this website to share the results of quality evaluation of existing CPGs at European local and national level on rare cancers with partners involved in the EU JARC Project. However, the JARC Work Package 6 does not accept any responsibility or obligation of any kind whatsoever with regard to the information contained on this site.

The  JARC WP 6 Website contains links to other websites.

Not having control over the content of these third-party websites, no responsibility is assumed for their policies or practices.

Therefore, please review the privacy policies of these third-party websites.

Tasks of work package 6

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  • Open issues about implementation of CPGs at the local level and their interface with reimbursement systems

  • Work out solutions on how to assess the implementation of CPGs in the context of ERNs and national clinical collaborative networks

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