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Topic: Female genital rare cancers
CPGs graded Strong
Hampl M, Schnürch HG et al. (2015). Diagnosis, Therapy, and Follow-up Care of Vulvar Cancer and ist Precursors. National Guideline of the German Society of Gynecology and Obstetrics (S2k-Level, AWMF Registry No. 015/059). 
https://www.awmf.org/uploads/tx_szleitlinien/015-059l_S2k_Vulvakarzinom_und_Vorstufen_Diagnostik_Therapie_2016-10.pdf
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ESGO (2016). Guidelines for the Management of Vulvar Cancer.European Society of Gynaecological Oncology | ESGO Guidelines. https://guidelines.esgo.org/media/2016/08/ESGO-Vulvar-cancer-Complete-report-fxd2.pdf
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D. Denschlag, F. C. Thiel, S. Ackermann, P. Harter et al. (2015). Sarcoma of the Uterus. Guideline of the DGGG (S2k-Level, AWMF Registry No. 015/074, August 2015); Uterine Sarkome. Leitlinie der DGGG (S2k-Level, AWMF-Registernummer 015/074, August 2015). DOI http://dx.doi.org/10.1055/s-0035-1558120. Geburtsh Frauenheilk 2015; 75:1028–1042. https://www.thieme-connect.com/products/ejournals/pdf/10.1055/s-0035-1558120.pdf 

CPGs graded Moderate
Santaballa, A et al. (2017). SEOM clinical guidelines in gestational trophoblastic disease. Clin Transl Oncol (2018) 20: 38. https://doi.org/10.1007/s12094-017-1793-0. https://link.springer.com/content/pdf/10.1007%2Fs12094-017-1793-0.pdf
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M. J. Seckl, N. J. Sebire, R. A. Fisher et al. (2013). Gestational trophoblastic disease: ESMO Clinical Practice Guidelines for diagnosis, treatment and follow-up. Annals of Oncology, Volume 24, Issue suppl_6, October 2013, Pages vi39–vi50, 
doi:10.1093/annonc/mdt345; https://academic.oup.com/annonc/article-pdf/24/suppl_6/vi39/6677684/mdt345.pdf
 
Tidy  JA, Coleman RE, Seckl MJ et al. (2014). Management of Female Malignant Ovarian Germ Cell Tumours; https://www.rcog.org.uk/globalassets/documents/guidelines/scientific-impact-papers/sip_52.pdf
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Banerjee et al. (2014). LCA Gynaecological Cancer Clinical Guidelines. London Cancer Alliance 2014;
http://www.londoncanceralliance.nhs.uk/media/75982/LCA_GynaecologyOncologyGuidelines2014.pdf
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Luesley et al. (2014). Guidelines for the Diagnosis and Management of Vulval Carcinoma.
https://www.rcog.org.uk/globalassets/documents/guidelines/vulvalcancerguideline.pdf
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Querleu D, Bonnier P, Morice P et al. (2016). Prise en charge initiale des cancers gynécologiques: Référentiels de la société francaise d'oncologie gynécologique (SFOG). http://sfog.fr/wp-content/uploads/2016/03/referentiel_sfog.pdf

Tasks of work package 6

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  • Map available clinical practice guidelines (CPGs) at the European level on all families of rare cancers and identify gaps

  • Quality evaluation of existing guidelines for rare cancer subtypes  

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The JARC Work Package 6 maintains this website to share the results of quality evaluation of existing CPGs at European local and national level on rare cancers with partners involved in the EU JARC Project. However, the JARC Work Package 6 does not accept any responsibility or obligation of any kind whatsoever with regard to the information contained on this site.

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Tasks of work package 6

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  • Open issues about implementation of CPGs at the local level and their interface with reimbursement systems

  • Work out solutions on how to assess the implementation of CPGs in the context of ERNs and national clinical collaborative networks

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